I think maybe I should count my life in dog years . I know I'm worse than I was last year and I have no idea how I'll be next summer so I think from now on I'll count my life in dog years.
Went to the HD clinic for another assessment this week - they checked my brain and my meds and my walking. I had to walk one foot in front of the other well I don't think even real people can do that it was tricky. I learned a few things like when you have this the singing part of my brain will be the last to go. That made me happy I mean if I have to have something when everything else has gone I'll still be able to sing to my daughters and my grandchildren.
One thing that bothered me quite a bit is seeing a woman there who doesn't use a walker or live in assisted living she lives alone near here and according to her friend sits home alone each day and feels sorry for herself and cries . The woman had the googly eyes you get with this, was very skinny and I couldn't understand a word she was saying . It scared me - I know at some point I'll end up like that but what I was thinking was who will visit me ? If I look too scary I can still hear and understand so I'm hoping my friends and family will still visit me.
Been settling into life at assisted living getting used to the quirks of everyone who live and work here and getting used to talking loudly. Some days I am quite spilling with my food (crackers went flying up my sleeve the other day) I said to every one guess I can';t say 'nothing up my sleeve' because there are crackers.
I dread the change of season -it means white shirts and pants and I'll make a mess of no doubt I seem to be having a lot of trouble getting the fork from the plate to my mouth without the food falling off. Though I like to live dangerously and so will eat carefully this season:)
I still make a lot of HD humour jokes and I think that as long as I can keep a smile on my face and love in my heart and a muffin and cup of tea, see my friends and family I am a very lucky woman ..
Now that Keith is nearby he picks me up so I can see Bonnie every day and he's been helping me do all the things I was having such a hard time with like getting groceries or watching the kids do their activities. What a big relief ....
that's all for now
Kath
