The been lucky enough to be talking a lot with with Jenny and spending time with Josie.
Jenny at equinox told me she wished for me is 'when HD makes me fall that with the good karma I have that I bounce right back up'. Good one for the season of balance with my unbalanced body.
I am blessed with my girls...
Not allowed to be ditzy anymore Jenny told me. I told her can't help it ( too much stuff in the 60's )whoops always hidden behind . I am smart she told me so I have to believe that.
I did some really dumb things the other day so figured I could blame the HD ..I did.
Every night I think of all the things I am grateful for I never have a self pity party . Jenny told me I need to no matter how I feel to make sure I walk an extra block or walk a little faster so when there is a cure I'll be in good shape for it. The hardest part of the day is morning I have to force myself to get up..very tired but what can I do ? Switch bodies with someone? Any volunteers out there?
The other day Josie ran in a race for HD a fundraiser on a trail in the cold and rain and she placed first! So proud ....I took pics.
2 things I learned the hard way I shouldn't drink tea at my computer -the other is not to be walking with a bowl of cereal ...Josie told me I need to be in a place with laminate floors she is right.
The gift of having HD diagnosis means I know what I'm fighting..
Went to a HD support group starting to get to know the people behind the diagnosis .
Still happy to have run away from asst living and living with the Bonnie I will never ever go back again .. don't have enough energy to cook so open a lot of tins of things and spend a lot of time at a deli buying soup they make great soup ..also a lot of time at Blenz and Starbucks . Been 8 months I've been in this place it was the right choice ...
Had a great time with the kids last week Josie had a bonfire at her lot also went out with them for sushi (I hate sushi)..but it was fun to see them..
very lucky to have them and Jenny and Josie ..and friends and family... blessed
so peace love to all think that;s all for now