at the clinic they tested my brain and my walking over and over I finally said 'my brain is too tired I need a rest'
I had to learn to accept this that I have it and that they didn't make a mistake and that I really can't drive.
I said ok fine I'll put a big "h" on my forehead as I was too embarrassed before when my walking was off or when I'll fall into the car. Now I proudly say 'I have Huntington's '.....
Josie was a big help she talked to them about things I didn't understand and when I needed it held my hand..
First the social worker, neurologist, geneticist then psychiatrist ....honestly the last one was the hardest .
There is no cure I may go loopy or not ....
I guess I need to even more than I did before be in the now...I'm on the waiting list for assisted living not exactly where I thought I'd be at 60 ...tho I hope that I don't need it and they say 'well you are a miracle you just stay in that condo.'
that's what I hope
forgot the best part I still get to eat ice cream and my sense of humour will be needed...:)
ReplyDeleteKeep applying that eyeliner and live every moment. I'm thinking about you a lot.
ReplyDeletethanks
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